I Am Bare – poem

Everyday I wake, in pain

I’m reminded of your gain

I bare my pain

You continue to live

To thrive

To be Alive

Whilst I simply survive



About NHS consultants, policy makers and shakers. At some point you should recognise that often patients have more than one thing wrong with them…it’s not that uncommon.

The mistakes that have been made have been life altering.

There needs to be a proper investigation into NHS care of Ehlers Danlos sufferers.

Lab rat still living. No follow ups yet.

Woman over 50, still rolling along.