Both Bing and Google are broken.
The internet spews up facts that are not.
People stare into a screen abyss forgetting their ability to recall.
Pathways are now built with feelings and walls.
If this is the new normal then I’m having none.
Falling out of love with the internet has begun.
End.
Samantha “unextraordinarybint” Harris
What is wrong with white people? This is aimed at white people in Europe not the States. I’m English and would also class myself as European. I voted to remain for Brexit.
How can white people not realise they may be a target for hatred? Because, in the same way my (white) ancestors had to scream out for help to London, most are not aware.
The media and social media only tell what it wants, but if you look you will find independent news outlets now giving out the very depressing news. Youtube is worth watching if you can circumnavigate the PR stuff, filters, sexist and racist search results.
Stabbing and shootings in towns up and down the country have increased dramatically during lockdown…they stopped collecting ethnicity as it was getting very obvious. In response, Far right activity rose by 4% to 8% of our countries total terrorist threat. This resulted in a news blackout of the ongoing attacks.
But, I want to talk about our health and the NHS, and a woman called Rano Bains.
Why should you be interested in what she says? Because she is Head of Equality and Diversity for many NHS Trusts and hospitals (national health service) in England. It is her words which drive policy, funding and training in our wards and universities.
Rano Bain’s words…
“The whiteness refers to white consciousness – the ‘silent’, pervasive, cultural norm that informs and shapes our racial ideology. Whiteness is constructed as a formless, empty cultural space that is neutral, natural and normative. Whiteness, because it is an unnamed, hegemonic position of privilege and power, becomes the point of reference for measuring others, unlike “blackness” which has been named in the language of white signification. Whiteness has defied scrutiny as it does not seem like a culture as everyone is apparently the same.”
hmmm…plain English would have been nice…..However, I will attempt to break it down.
Do white people know what other white people think? She makes it sound like we are plugged into an invisible big psychic cloud. Her claims of white consciousness of people in Russia, Israel, Poland being the same as white people in England, Germany or America are terrible.
It shows her racism immediately. The first line says that she is viewing white people from a position of suspicion and it is white people who declare racial identity, to her. Is Ms Bains the type of person who should be running our ‘equality and diversity’ departments?
Current serving Ministers have declared that white privilege has no place being taught in our schools, but are they aware that it is taught in our NHS to our healthcare assistants, nurses and doctors?
White people come lower down the humanity chart to many people in the media, the health care profession and education. This has to change. All lives matter all faiths matter, including those without faith – that doesn’t mean they make the rules.
When people are not offered the same facilities and services it is called discrimination. (eg. TB vaccine). When they are not warned of extra risks to them, (eg. flu vaccine) this is racism.
White people are the only race not afforded the indigenous land protections.
In this manner, the United Nations is racist.
My country – The United Kingdom of the British Isles, is a country RICH in culture and heritage. It is wrong to say we have none. To be frank it is racist to say white people have no culture.
Terms like ‘snowy peaks, and ‘the whiteness‘ are racist. They should not be allowed within training programs in our national health system. They should be discredited by academics within our schools and universities.
Explain to me why white people are criticized for holding positions in predominantly white citizenships or companies? How can that possibly be racist? But, it isn’t racist that African’s insist on their land being owned by black people? It isn’t racist that native American Indians have land that is just theirs?
If white people want their own space, it’s racist?
Explain why Christians can’t say they hate Islam? Both are bad, but Christians have become tolerant and are the standing religion in the UK along with paganism. Religion isn’t even a race but somehow it is being added to our ‘hate crime’ laws, originally designed to protect everyone. Soon I will be unable to say I hate religion!!!
This directly threatens our free speech and our security.
Explain why a black person (from anywhere) is on our national news talking about feeling hurt because she suspects racism? She suspects it was racism…? She may be getting hassled for all sorts of reasons to assume it is racism is not on. Because she is in a predominantly white country she declares racism, but she works within a predominantly non white environment in the NHS in London.
Regardless.
How is this national news when the same day people were stabbed, on UK streets, for being white? Another incident only covered at a local level, as all of these types of murders now.
Murder by colour code. If you are a white murderer or white child killer you will be plastered over the media, if you are black/brown/not English you may not even get arrested if your child dies unexpectantly unless the public pull the police up.
Explain why George Floyd is on BBC but Cannon Hinnant isn’t? Neither murder happened in Britain (BBC stands for British Broadcasting Corp).
I’m scared. I stand as someone who was attacked by people who were not of my colour. I am not imagining the hatred towards me. I’m verbally attacked when I leave my home by an awful Russian woman (white). I’m scared of the doctors and nurses no matter what colour they are, as many view me as spoilt immediately because I am English. White Irish ambulance staff can be especially mean. All white people are not the same!
As an English person I learnt a long time ago to lie about where I am from, but I will never again. I educated myself away from the white guilt, the same as I educated myself away from the Christian guilt and can now see it for what it is. Both are run for greed, envy, laziness, brainwashing and corruption.
I stand as someone who was born in Plymouth, Devon, England. The full history is not covered by the Americans EVER…they remain race blind on the slave trade history because of their own sordid history and because it suits certain people politically.
This lady, Rano Bains (no idea where she is from), has a nerve to say this of England with her Whiteness perspective. However, we are the most tolerant of countries. Perhaps she cannot see a long history or culture within our country, but surely this does not mean there isn’t one?
I read her pdf in 2018 and have been stewing since. I didn’t want to do a piece as I don’t want to add to a rise of hatred towards anyone but it seems I do need to defend myself and my life. A black lady is found online saying all white people are inbred and most of the comments underneath agreed…however, you will not be able to find it.
Search for any attack on a white person and google immediately takes you to black lives matter material unless you know the name of the victim and the date you will not find it on referenced on our news. Google is not relevant and neither is youtube.
White people are not the same, nor do we think we are the same. We are classed as white for measurement of resources for assurances to black and brown people to ensure that facilities are shared equally.
Also, we now appear to have strange advert quotas – air brushing blond people from TV, advertising, film and social media in Europe is also getting very tedious. European people are white. Get over it. Stop telling us we are racist.
White people are just people. We don’t deserve any more or any less than any other human. It is Rano Bain’s term, The Whiteness, that gave birth to many of my poems reflecting as The Blackness….ideally I wouldn’t be seeing the world in this manner. I never used to. But, this is obviously the idea, after all, you cannot capture a culture and it’s resources without upsetting a few people.
Our national anthem has come under attack. Us Brits will ignore it and will carry on with it but for the English (traitors), Americans, Indians, Pakistanis, Russians and African who called for it to be banned, please get a education by reading the following.
The history behind the British song Rule Britannia, UK national anthem.
In the 1600s the seas around Britain were ruled by North African Slavers(who were black). They boarded British ships and carried off the crews (whites) to be sold as slaves in Africa. The situation became so bad that fishermen wouldn’t put out to sea in case they were captured by African Slave Traders.
Between 1609 and 1616, 466 British ships were captured by Slave Traders in the English Channel, Irish Sea and North Atlantic, and the crews were sold into slavery. White crews.
Some other historical news stories from England include,
In 1625, sixty English people (white) who had taken refuge in a local church were dragged out, loaded up and taken off to Africa to be sold as slaves from Mount’s Bay in Cornwall
On 12 August 1625 the Mayor of Plymouth wrote to London for military help after 27 ships had been seized by North African Muslim Slave Traders in just 10 days.
In 1645, 240 people were seized as slaves in Cornwall.
White people – valued by other nations because of the colour of their skin for abuses in other countries. We didn’t value ourselves higher because of our skin they did because they wanted it.
One or two survived, made their way back to England and wrote of their capture, but most didn’t.
The situation only began to improve for Britain after the end of our English Civil War when the Royal Navy was built up under Oliver Cromwell.
By 1700, North African Slavers generally knew better.
It was in honour of this defence of our security, that in 1740, James Thompson wrote ‘Rule Britannia’.
Apathy will not help our children or our grandchildren. I stupidly did not go to the police over my own attack in Kings College Hospital but I did complain and I did go to my GP about my injuries so it is a matter of record. I also took photos of my injuries, they amounted to bruising.
People need to stop talking about racism as if white people are always responsible. Racists are everywhere and you cannot tell them by their colour.
Stop believing that because of colour you should have less and be grateful because you have nothing to feel bad about.
Stop believing that because of colour you should have more and other people owe you something.
The end.
Leave a comment if you like, I suspect this will be filtered out of google and bing search anyway.
Thanks for reading.
If anyone else can decode Ms Rano Bain’s words please enlighten me. Pardon the pun.
Are you fam?
Would you know?
Who I am?
DNA will say.
We are in an age
When all alliances
Will go astray.
To find commonality
In humanity
I need to tell you
Hatred
Is distraction man
Love is
Bringing up the rear
No priority
Re-arranged here.
Fin
By Samantha Harris
I thought I’d share this one with you in case you missed it. You wouldn’t miss it if you lived nearby!!!
This is the Statue of Unity in India.
It cost $420 million dollars to build.
The people forced to work the land it’s built on, protested because of the poverty and waste.
This is the package that our government is giving to India…
https://www.gov.uk/government/publications/profile-of-development-work-india
This pdf suggests that our, I’m writing from England in the United Kingdom of the British Isles, aid package to India is decreasing by quite a lot. In the year 2018 they are given £98 million (Guardian) and this year are due to get £46million.
After their government (Modi, I believe) has spent so much money building a statue when many in his country are without the essentials in life it leaves a sour taste in one’s mouth. You either need the money or you don’t to be frank.
Building statues twice the size of the Statue of Liberty, in a place where people would not generally see them, smacks of someone who does not know how to budget. So, all governments waste something but this guy is a completely different scale. As you can see.
This piece is not about knocking India. Like I say Indians are beautiful. They are suffering from terribly high death toll from covid19 and my heart breaks for how the mismanagement of the basics in their country will have led to the extra deaths. Plus we all saw on social media how the police were enforcing the most severe lockdown seen on the globe…
The main reason for the statue was and is UNITY. Now that the monster is built we should at least talk about it. For me, it is hardly a good looking statue but that could be because I’m not Indian. I’d love to know what others think, especially Indian’s if there are any out there who read this and speak English please drop me a comment or message me privately.
As a tourist attraction is it a hit or a miss?
Curiosity Killed The Cat/Ordinary Day – From the Album Keep Your Distance
Thanks for reading.
Trying to keep patients safe in the NHS.
In Callow Land
Owls screech
Down Fall the Roe
Submission
Into light so bright
Burning without
Moons healing shadow
Press hands
On mercy knees
Smiles spread
On face of He
Return to a place
Secreted in history.
We sense they come.
One sole hangs in the scales
Nought one shoe can do.
Beg Humanity to see
The beauty that surrounds us
In a leaf or a humbler tree?
So, although they silence me
And, cut me deep too
I bleed blue, a blackberry hue
I will come back and take
My land,
That’s promised you.
Your fear too real
Endangering
Life you would steal
I lay down the lavender
To placate, replicate
For You and Its late,
Ones at the gates
Staring lusty eyes search for holes
Greedy to trade the souls
They sayeth devil be blamed
Just Gods on side, and
Under his wing
Opportunists will hide.
Less married women!
Single breeders evil be.
Feed the children you have sown.
Become the Father
It’s your place to own.
Or should be! (If you took responsibility.)
The innocence of soul be free,
Stop taking it for thee.
Filling youths’ heads
With catastrophe
And calamity,
After calamity.
To survive I must desist.
Disappear into the mist.
My love, I leave you
Upon freshly axed logs
Scented of woodland fresh
Surrounded in bluebells
With honey and primrose breath
Where dragonflies flutter
Unwritten but uttered.
The end
By Samantha unextraordinarybint Harris
“The UK is leading the world with studies of the new corona virus” says the news reader, “It’s ‘recovery trials’ are doing well”. It’s recovery trials? I do a little digging. Ah, this the name for the current drug trials for treatment of covid19 in the UK that are now starting to come to an end.
I found this, that some of you may find interesting, it’s worth watching all the way as I imagine it will be removed fairly quickly. This video does raise some concerns for the patients and the study. Listen to Dr Been (!) It gets interesting just before half way through, although it was useful from the beginning. I like his delivery and simple explanations.
One cannot help but wonder how this study was allowed and if the patients were really informed. I say this as I know someone who has died from covid19. After a day of attempting to get some paracetamol (there was a shortage) to get his temperature down he called the doctor. He had breathing difficulties generally and his chest was hurting. His temperature was sky high and he was sick.
An ambulance came, lots of things happened, but the main one was that he was put in a medically induced coma for his safety. No one was allowed to go with him to the hospital. I’m assuming it was same if not similar for the thousands of others who have died. Did he have drugs trialled on him or did he get the very best treatment he normally would?
Hydroxychloroquine was being trialled here on very sick patients. I have to agree with this doctor. This is not a good study. This is not ethical. As such the data is not reliable not to say how worrying it is for the British public who, unfortunately see the NHS as not being able to do them any harm.
Welcome is involved which is nice to know. They are a huge organisation with great resources and are working with the NHS.
Oxford and their ‘pathways’ of treatments…thankfully started recovery trials before we got locked down in mid March 2020. How very organised they were. Let’s hope that all the patients involved would have died anyway of covid19 because otherwise this is bad.
Note, that they talk constantly of the drugs that they are studying. No one mentions patients other than where they are recruited from geographically, their demographic and that, stated very factually, there is around a 25% fatally rate in trial members.
It should be noted that these are drugs that are already licenced, not new drugs. These are known drugs being looked at under clinical guidance in different settings and doses. For instance Hydroxychloroquine is usually prescribed, cautiously, in out-patients but in these studies it is being given in huge doses at the beginning of admission to extremely ill people. This study took seventy-six days and recruited over a thousand patients.
Suspected covid19 patients are invited as well as actual covid19 positive patients.
The outcome of the studies is one of two. Does the patient live or not. So, these drugs trials are only measured by fatality. Who is looking out for the interests of these sick, probably disorientated patients? Again, is this ethical?
What happened to getting blood samples or mucous and studying them? What happened to diagnosing the patient and then treating the disease which has actually been found? According to the reports many of the trial members did not have covid19. If this is the case the ‘successful’ medicine is simply going to be licensed for treatment of covid19 if it does no real harm.
I long suspected that the UK was allowed to ‘become infected’ with covid19 in order for the NHS to be used to collect data from the infected patients to sell to pharma. But it looks like I was wrong. Big pharma control more in the NHS and the patients are now the new ethical ‘animals being experimented on’.
Thankfully the NHS is filled, mainly, with individuals that do care and for this reason we will all still continue to support the NHS.
Thanks for reading. Hope it isn’t the same Dr Been.
I sat through an hour of this….I’ll admit I didn’t sit through any more. The picture makes it look like it’s to do with Corbyn but it’s not. This video is about the voting system in England and how it needs updating as it’s as secure as swiss cheese.
One is just left thinking,
“Why isn’t this a priority?”
This tells me that our suspicions are warranted.
This tells me that actually, if we have issues with our voting system there is no recourse right now, as the law stands, as the voter would cover the cost of the investigation!!!
It’s a real surprise that anyone gets caught at all, thankfully they do, not many though.
It’s damn right lazy of our Government not to have fixed this before now.
Incompetence or Conspiracy?
Or maybe they were hoping to blame it on the Russians again?
PROTHALAMION is an interesting old poem. By English Poet Edmund Spenser born around 1552 – died 1599. Published in The Penguin Book of English Verse.
As it is old English, I have left the spellings as they are written. Full ten verses are put down exactly as they are in the book – it is not my typing!!!
Edited by John Hayward
Book Club Associates London 1956 and 1978
Prothalamion
Calme was the day, and through the thrembling ayre,
Sweete breathing Zephyrus did softly play
A gentle spirit, that lightly did delay
Hot Titans beames, which then did glyster fayre:
When I whom sullein care,
Through discontent of my long fuitlesse stay
In Princes Court, and expectation vayne
Of idle hopes, which still doe fly away,
Like empty shaddowes, did afflict my brayne,
Walkt forth to ease my payne
Along the shoare of silver streaming Themmes,
Whose rutty Bancke, the which his River hemmes,
Was paynted all with variable flowers,
And all the meads adornd with daintie gemmes,
Fit to decke maydens bowres,
And crowne their Paramours,
Against the Brydale day, which is not long:
Sweete Themmes runne softly, till I end my Song.
There, in a Meadow, by the Rivers side,
A Flocke of Nymphes I chaunced to espy,
All lovely Daughters of the Flood thereby,
With goodly greenish locks all loose untyde,
As each had been a Bryde,
And each one had a little wicker basket,
Make of fine twigs entrayled curiously,
In which they gathered flowers to fill their flasket:
And with fine Fingers, cropped full feateously
The tender stalkes on hye.
Of every sort, which in that Meadow grew,
They gathered some; the Violet pallid blew,
The little Dazie, that at evening closes,
The virgin Lillie, and the Prmrose trew,
With store of vermeil Roses,
To decke their Bridegromes posies,
Against the Brydale day, which was no long:
Sweete Themmes runne softly, till I end my Song.
With that, I saw two Swannes of goodly hewe,
Come softly swimming downe along the Lee;
Two fairer Birds I yet did never see:
The snow which doth the top of Pindus strew,
Did never whiter shew,
Nor Jove himself when he a Swan would be
For love of Leda, whiter did appeare:
Yet Leda was they say as white as he,
Yet not so white as these, nor nothing neare;
So purely white they were,
That even the gentle stream, the which them bare,
Seem’d foule to them, and had his billowes spare
To wet their silken feathers, least they might
Soyle their fayre plumes with water not so fayre,
And marre their beauties bright,
That shone as heaves light,
Against their Brydale day, which was not long:
Sweet Themmes runne softly, till I end my Song.
Eftsoones the Nymphes, which now had Flowers their fill,
Ran all in haste, to see that silver brood,
As they came floating on the Christal Flood.
Whom when they sawe, they stood amazed still,
Their wondring eyes to fill,
Them seem’d they never saw a sight so fayre,
Of Fowles so lovely, that they sure did deeme,
Them heavenly borne, or to be that some payre
Which through the Skie draw Venus silver Teeme,
For sure they did not seeme
To be begot of any eathly Seede,
But rather Angels or of Angels breede:
Yet were they bred of Somers-heat they say,
In sweetest Season, when each Flower and weede
The earth did fresh array,
So fresh they seem’d as day,
Even as their Brydale day, which was not long:
Sweete Themmes run softly, till I end my Song.
Then forth they all out of their backets drew,
Great store of Flowres, the honour of the field,
That to the sense did fragrant odours yield,
All which upon those goodly Birds they threw,
And all the Waves did strew,
That like old Peneus Waters they did seeme,
When downe along by pleasnnt Tempes shore
Scatted with Flowres, through Thessaly they streeme,
That they appeare athrough LIllies plenteous store,
Like a Brydes Chamber flore:
Two of those Nymphes meane while, two Garlands bound,
Of freshest Flowres, which in that Mead they found,
The which presenting all in trim Array,
Their snowy Foreheads therewithall they crownd,
Whil’st one did sing this Lay,
Prepar’d against that Day,
Against their Brydale day, which was not long:
Sweete Themmes runne softly, till I end my Song.
Ye gentle Birdes, the worlds faire ornament,
And heavens glorie, whom this happie hower
Doth leade unto your lovers blissfull bower,
Joy may you have and gentle hearts content
Of your loves couplement:
And let faire Venus, that is Queene of love,
With her heart-quelling Sonne upon you smile,
Whose smile they say, hath virtue to remove
All Loves dislike, and friendships faultie guile
For ever to assoile.
Let endlesse Peace your steadfast hearts accord,
And blessed Plentie wait upon your bord,
And let your bed with pleasures chase abound,
That fruitful issue may to you afford,
Which may our foes confound,
And make your joys redound,
Upon your Brydale day, which is not long:
Sweete Themmes run softlie, till I end my Song.
So ended she, and all the rest around
To her redoubled that her undersong,
Which said, their brydale daye should not be long.
And gentle Eccho from the neighbour ground,
Their accents did resound.
So forth those joyous Birdes did passe along,
Adowne the Lee, that to them murmured low,
As he would speake, but that he lackt a tong
Yet did by signes his glad affection show,
Making his streame run slow.
And all the foule which in his flood did dwell
Gan flock about these twaine, that did excel
The rest, so far, as Cynthis doth shend
The lesser starres. So they enranged well,
Did on those two attend,
And their best service lend,
Against their wedding day, which was not long:
Sweete Themmes run softly, till I end my song.
At length they all to mery London came,
To mery London, my most kindly Nurse,
That to me gave this Lifes first native sourse:
Though from another place I take my name,
An house of auncient fame.
There when they came, whereas those bricky towres,
The which on Themmes broke aged backe doe ryde,
Where now the studious Lawyers have their bowers
There whylone wont the Templer Knights to byde,
Till they decayd through pride:
Next whereunto there stande a stately place,
Where oft I gained giftes and goodly grace
Of that great Lord, which therein wont to dwell,
Whose want too well not feeles my freendles case:
But Ah here fits not well
Olde woes but joys to tell
Against the bridale daye, which is not long:
Sweete Themmes runne softly, till I end my Song.
Yet therein now doth lodge a noble Peer,
Great Englands glory and the Worlds wide wonder,
Whose dreadfull name, late through all Spaine did thunder,
And Hercules two pillors standing neere,
Did make to quake and feare:
Faire branch of Honor, flower of Chevalrie,
That fillest England with thy triumphs fame,
Joy have thou of thy noble victorie,
And endlesse happinesse of thine owne name
That promiseth the same:
That through thy prowesse and victorious armes,
Thy country may be freed from forraine harmes:
And great Elisaes glorious name may ring
Through al the world, fil’d with thy wide Alarmes,
Which some brave muse may sing,
To ages following,
Upon the Brydale day, which is not long:
Sweete Themmes runne softly, till I end my Song.
From those high Towers, this noble Lord issuing,
Like Radiant Hesper when his golden hayre
In th’Ocean billowes he hath Bathed fayre,
Descended to the Rivers open vewing,
With a great traine ensuing.
Above the rest were goodly to bee seene
Two gentle Knights of lovely face and feature
Beseeming well the bower of anie Queene,
With gifts of wit and ornaments of nature,
Fit for so goodly stature:
That like the twins of Jove they seem’d in sight,
Which decke the Bauldricke of the Heavens bright.
They two forth pacing to the Rivers side,
Received those two faire Brides, their Loves delight,
Which at th’appointed tyde,
Each one did make his Bryde,
Against their Brydale day, which is not long:
Sweete Themmes runne softly, till I end my Song.
proof that munchausen is not a safe medical diagnoses
People do not get fair treatment within healthcare services. Equality was fought for and won and it should be delivered across the healthcare services in the UK. Only it hasn’t worked out like that.
It seems the medical and psychiatry services have been playing with people’s lives all over the world, with Britain taking a leading role. Children are removed from women diagnosed with syndromes that doesn’t exist.
Children suffering from Ehlers Danlos have been removed from parents too. Lots of interference in family matters because of medical diagnoses. This is because EDS is not taken seriously in our country. It’s linked with depression and mental illness rather than the connective tissue disease it is.
There are whole families, generations, ruined by the interference of doctors telling family members that their mothers have Munchausen syndrome when usually they are suffering physical and mental trauma from childhood sexual abuse or plain old rheumatism – which is a well known medical health problem, not a mental illness.
I feel that it is time for academics and scientists to get things together and start being truthful about how arbitrary these diagnoses are. At the moment family courts in the UK are in crisis with the amount of children at risk of being removed from families who have not had proper advice on looking after their children.
It is time for patients and families to start questioning doctors. It’s becoming easy to think that some doctors keep you ill – they are not interested in making you better and you not coming back to see them. One of my favourite sayings about doctors is that they don’t get paid extra to do their jobs.
Fibromyalgia is another such diagnoses I see a lot of people diagnosed with recently, myself included – although I immediately argued it. The over made up, cosmetically inept female Shi Lankan doctor telling me that I do have fibro as well as Ehlers Danlos…in her fifteen years of experience.
I told her I have met other people with fibro and they have all over pain, including headaches which I do not suffer from. I again point out that I have had this rib pain since 2009 and it is getting worse having spread from one place under my right arm to now going across my back to under my left breast – basically in the exact place I had shingles when I was twenty years old.
I tell her I feel it could be pleural membrane infection of some sort or a breakdown of the tissue between the ribs as in common with Ehlers Danlos sufferers and of course I have the added cystic lungs. I ask again for some steroids and tell her I had just started HRT and already am feeling the benefit with my thought and emotions. I tell her it is the same pain as when I was diagnosed with pleurisy in my twenties, it just is a larger area.
The doctor completely ignores me. She declares that I do have Fibro she has decided I have it and there is not a chance that I can stop her. The fact I don’t have pain all over or headaches does not worry her at all. I realise when I get the follow up letter that this diagnosis will place me firmly back into ‘faulty pain receptor’ category in medical terms within NHS England’s treatment plans.
Having this diagnosis opens the gates for me to be offered all sorts of neurological pharma wonders like Gabapentin and Pregabapentin…and lots of other mind altering drugs which I have already done thankfully so won’t be tricked into again. I have mental health issues and it’s hard enough to keep a hold of my emotions.
However, it does make it hard to claim benefits. It could be seen as you could work – as you have no reason for your pain. Thankfully I have my paperwork from previous years proving this is not the case for me but how many other people keep all their medical letters?
Chronic Fatigue Syndrome is another umbrella term for all over pain with no reason – however, full test aren’t done to exclude other things…these are arbitrary decisions that the doctors make based on the latest guidance from NHS England rather than actual medical knowledge.
Symptoms of all over pain. Apparently a ‘faulty pain receptor’. It is linked with mental health as there is no reason for the pain – no reason for the pain. Many patients find themselves in ‘well being’ classes rather than any real treatment.
Let this simple statement sink in, apparently someone is experiencing pain for no reason with Fibromyalgia. However, the doctor will supply pain killers and other drugs for this condition and more importantly it is linked with depression so antidepressants are often also offered as course of treatment.
For me it is not the correct diagnosis. I don’t have muscle pain. I have joint pain. I have nodules on my hands from my swollen joints. I have a huge amount of pain around my rib cage, the pain radiates from the tissue between my ribs. I don’t get headaches. I do faint and suffer from fatigue. I also have Bullous Lung Disease, around 25% of lung function left and mitral valve prolapse and thickening of the left ventricle of the heart.
I don’t have a faulty pain signal – I am in pain. I also have large mass around my bladder from the TVT which is likely to be causing an auto immune response in me as I have been diagnosed with interstitial cystitis for last fifteen years which is also very painful – oh and I have endometriosis and a faulty jaw.
I almost faint every time I fart from the pain caused from the Stapled Hemmoroidoplexy and the TVT wrapped around my bladder. I don’t just have Fibro. I am in pain.
I complained about the diagnoses at the time and afterwards I phoned and complained to the clinic. Nothing happened. I thought I’d argued and proved my case but no. Now her diagnoses has trumped all my other diagnoses, including my hypermobile jaw which dislocates regularly and my stomach problems including peptic ulcers and my extremely sensitive, painful, ears.
But no, it’s none of those things I am suffering from – all the other doctors, scans and tests are wrong. According to this new doctor I have a Vitamin D deficiency and Fibromyalgia. When I looked up my results I found that my blood levels weren’t that deficient in vit D according to NHS guidelines. I had a raised CRP level which ought to be investigated but she hadn’t pointed this out.
It all falls on uncaring and corrupt ears. Now when I get taken into hospital they look on the system they see depression and fibromyalgia – it doesn’t help when you do actually have mental health problems too. So I am ignored on medical grounds because of this diagnoses that is ill founded. I am one of many being treated in this manner, it means they can officially ignore me.
Basically it’s one service for some a great service whilst another gets treated appallingly. One person comes in walking with chest pains he is taken to cardio and hooked up to the monitors. Another comes in with chest pain and is asked if she is anxious and why she thinks she needs to be there…
These common misconceptions about men and women serve no purpose other than to deprive women of healthcare services and give men a false belief that they are better. The most common killer of women over 50 in the UK is heart disease.
It’s not cancer or drinking alcohol, it’s heart disease. We need to start demanding to be taken seriously and not be tarnished with these old outdated medical opinions that only serve some interests.
If you use the NHS England’s BMI checker you will not get the same advice regarding health if you are obese and white/other as you would if you were of Indian or Black African descent. We have to stop treating people according to their ethnicity, as race is not a defining characteristic of health.
We all have to pay into the system when we work. We have the right to treatment. When people have complex medical history, this should be taken into account, not just the last doctor that was seen. This doctors decision to diagnose Fibro assured a total denial of service when it happened to me as doctors in AAU refused to look past the last diagnosis.
The medical healthcare systems such as NHS England and pharma companies and hospitals must treat us all the same regardless of race or gender. The inequality is becoming too much. We need to start pulling back against the move towards the dark ages.
No to hysteria, no to new Munchausen syndrome diagnosis and real treatment for people in pain. It’s time to treat anyone in pain – regardless of gender, race, age, disability, colour or nationality. We are all humans.
wow we have so much to look forward to with all the plans to ensure our wonderful planet is looked after and loved. I noticed that religion was using publishing to educate people incorrectly and shared a numerology secret.
It has been a strange time for me. After I shared my awakening knowledge that 666 actually meant Gypsy Fox I got bombarded with viruses and abuses online and off. Then I found a book I had at school which is called country crafts. It contains some terrible history and mis-information about other cultures. Printed by the AA it makes me wonder how long industries have been dirtying the waters.
I can just see the sun through the clouds as I look out across Watford, I can see the Harry Potter studios from my flat. There isn’t much land here but we all know how important this land is to some. The Munden Estate is already a mini American Israeli state with media all over it. Then we have the George Harrison Hari Krishna crew who don’t worship Krishna anymore but something similar. Regardless of your beliefs this land is still pagan land.
The Seventhday folks homestead on Sheepcotes Lane can also be seen from my flat. My big tower block must really spoil their view. They should know I sent them blessings too for every time they pray for me. The local traveller community are taking a big hit with the new developments. A local boy was knocked off his bike and paralysed, the man who did it got off as he claimed he was scared.
Life is sad, they say to me. I don’t think so. Sad things happen but I still can hear the birds singing. Spring break is here, Beltane, Easter, Passover whatever you like to call this time of year. Summer will be upon us and soon and it is time to sow your seeds for growth. My mood is somewhat lighter, what about yours? What are your plans for the coming year?
So many changes have happened to protect our earth and those who live within its’ space. Yet there is still so much mis-information about the achievements made. Be sure to search for good local news. With so many of our local papers being owned by American companies it is difficult to get an unbiased story.
Did you know that judges held the Native Americans line for them? Great times as we move towards. Pipelines will not be put across Americans great plains for fuel firms against the community and countryside wishes. It’s good to know the law still holds. We must ensure the same for our country.
Now we have issues to do with women’s equality and child safeguarding to deal with. Women are of every race regardless of faith and as such should be and will be protected in America and the UK, where we have influence . We mustn’t allow faiths to continue to force women into marriages and families which do not have their best interests at heart.
For too long we have let race and faith dictate our social attitude. This has to stop. We are the same but different. Morality, Honour, Respect, Family are all terms used to oppress women and children in our western societies. This judgement of humanity by humanity for God, Allah or Mermaids or other such doctrines must be stopped.
To create is human. No god has ever created anyone or ever will. People are created by the union of sex between people. Sex is normal and healthy.
FashionableFaithGroups it is time for you to look in the mirror at yourselves not others.
What a few days April 2019 has been – let’s fill the rest with peace. NO more lies about other peoples. We have the web and should be taking down fences and boundary’s not allowing others in to put them up!!! I say no to religious freedom because it does take away my freedoms and gives to much power to the family unit.
Time is now.
Even
unextraordinarybint Samantha Harris in London, England. 
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