Tag: bladder

No Better – Review Stapled Hemorrhoidopexy. Honest/Blunt.

A week ago I had my appointment at NHS colorectal specialist regarding my butt pain.

This is now the third hospital I’ve been seen for looking into this. I wish they’d share medical records… I’m reminded of how, last decade, I used to go from hospital to hospital over the bladder pain. Then I read an article which told me it could be the TVT polypropylene mesh.

I read through the doctors letters that I had and saw that it was being mentioned as okay when I wasn’t really aware that this was what they were looking at.

Each consultant said the same thing “no erosion of the TVT”. I know now that there is no possible way they could have seen this by these investigations and each one of them lied.

Taking you back to 2005 when I had an Hysterectomy for Endometriosis because of night sweats and crippling pain. I was discharged from the ward six days after my surgery without clearing my bowels. I was re-admitted five days later having still not cleared my bowels.

Four years after that I am having a Stapled Hemorrhoidopexy, which I am unaware is a new procedure. The story of getting to that point is a whole book of horrors for another day.

I wake after the Stapled Hemorrhoidopexy in what the medical profession disgustingly call “exquisite pain”. That is not the correct term. The correct term would be horrific pain that will never be forgotten, worse than child birth. I woke screaming like a banshee. There was nothing exquisite about it. Sick sacks.

If you look up Stapled Hemorrhoidopexy, the gumph will tell you it is a painless, minimal invasive procedure and that you will be back to work the next day. It is not true. Far from it. This is a cut and shunt that you will be lucky to be standing up comfortably the next week, let alone the next day.

It definitely doesn’t suit everyone and if you have Ehlers Danlos like myself I would recommend not having it and demanding the older technique with biological material and a gentle hand. A huge mechanical stapler being shoved up your arse is not easy to recover from.

I have not yet found out what they used to fix the cut, the surgeon told me it was a ‘composite ring’. I am in the process of getting my medical records because of the TVT Mesh case I am trying to bring against the NHS, I am trying to find what this ‘composite ring’ is made of…because of my butt pain whilst I’m there.

It’s been eleven years since I had the Stapled Hemroidplexy to correct my evacuation problems. It didn’t work. It never worked and now it’s incredibly painful and has been for a few years – getting worse as time goes by.

Care is bad for women patients in the NHS. Since closing the women’s hospitals we have to travel hundreds of miles. I’m in so much pain, it is incredibly hard to to travel to several different areas of the country for what is essentially an inch difference on my body.

Common sense seems to have left the building and thousands of people are left on benefits because of operations and procedures like this…it costs the government and the tax payer millions.

During my recent (Dec 2020) consultation I was not asked my history…we didn’t have time. My kind doctor told me that my upper and lower abdominal CT Scan, poo sample and blood results had all came back normal.

To me, that is instantly worrying. They’d done a chest CT too… I have bullous lung disease, or cystic lungs…clearly visible on a scan if any one looks at it. At stage four I have a heavy shadow on my right lung unavoidable to any eye let alone a trained eye of a radiographer.

As a patient being told that they can find nothing wrong when you are unable to sit down during the consultation is an unpleasant situation. I had no option but to have the poor consultant physically examine me. She would be sure to feel the rectroentrocele (or something) to show that I am not mental.

There is no understatement when I say it really fecking hurt.

Like last year at Watford General, it was very difficult and upsetting.

More painful was her finding something, checking with me that it hurt, and then pushing on it…the pressure made my heart flip and my ears pop. I tried to go through the wall on the other side of the bench to get away from her soul pressing finger.

The doctor handed me a wipe and some tissues. Getting dressed I wondered what she had found and how on earth I was going to get through Christmas in so much pain.

The doc has told me I am in pelvic spasm and given me some cream to use until I see her again early next year. I will let you know how it goes. I’m due to see her again in February 2021 – unless we are still in covid19 lockdown and it’s cancelled.

Thanks for reading.

Poor guy.https://www.researchgate.net/publication/51172093_Hemoperitoneum_as_severe_and_unusual_complication_in_the_stapler_recto-anopexy_for_hemorrhoidal_prolapse_Case_report

Top London Hospital Admits Patient Safety is at Risk.

Kings College Hospital is putting the safety of some of it’s patients at risk. Safeguarding patients should be at the forefront of hospital policy. KCH are admitting to having lost control, in part, by being unable to investigate historical cases.

I have been waiting for an investigation into what happened to me during a routine operation at Denmark House, London.

Here is the response I am getting…

Thank you for your email. I have escalated this to the General Manager. This was initially forwarded to the Service Manager. We were waiting for advice from the consultants as confirmed by the Service Manager.

I am unable to log your complaint formally as this is over 12months – please refer to our complaints procedure. Therefore the way forward is advice from our Service Managers and the Division.

It’s polite, for sure, but it never goes anywhere. Saying that there isn’t a complaints procedure for me to follow as it’s over 12 months is not responsible.

Put as briefly as I can, after theatre I had a major problem with the oxygen mask where I almost lost my life. I complained. It happened on the 12th December 2012. I also asked some questions regarding the other patients who were lying, in gowns, sleeping next to me in the freezing corridor.

Then, last year, I requested a copy of the letter the consultant wrote to my obviously inadequate GP. This urogynaecological consultant said my womb and cervix (removed by hysterectomy at another hospital previously) were fine and not eroded by the TVT mesh.

Outraged, I complained again and asked them to re-investigate the attack on me and investigate the operation. I did it as soon as I found out. Now it’s been a year since I started asking Kings College Hospital London again.

So if you or a loved one are booked into London College Hospital, be very cautious of how you are being looked after. I have written a partial account on my blog for you, but basically I woke in the cold corridor – supposedly in ‘Recovery’ and had an ugly incident with staff and oxygen mask.

So, there is two incidents or situations for them to investigate, the oxygen mask attack in recovery and the surgical operation to view the TVT mesh, I was put under General Anaesthetic for, they couldn’t have done it as the womb cannot regenerate.

As yet, I have not named the consultant online but I feel that the hospital, in it’s refusal to take this seriously and respond in a reasonable amount of time, is leaving me little option but to name them. I know that the consultant is aware of the situation as I called them.

Incidentally, when I did call the consultant… In the truly demonic style of the arrogant doctor, they advised me to get my GP to refer me to them. After so many years of suffering, which could have been cut short by this consultant doing their job, I found myself slamming down the phone.

In 2012, this consultant concluded the mesh was not the reason why I couldn’t have sex. It was not the reason that I was in continual groin pain or had blood in my urine… As a result, I was sent for physio, the physiotherapy I was given was not appropriate and it snapped the TVT mesh completely and I am now spending a lot of my time in a wheelchair.

I am awaiting removal of the TVT mesh – it’s seven years later, now 2019. That is seven years of my life. Four of which have been spent on benefits as I can not work consistently well enough to support myself financially.

The NHS consultant who lied and cheated me continues to get their £70,000 a year tax free plus the other benefits – Johnson and Johnson flew the consultants out to Las Vegas, as a bonus for installing the TVTs…I digress sorry…brain fog.

So, as I said, I called the consultant, their arrogant and dismissive response was to get my GP to refer me to them… Obviously I am not going to do that. So, I find myself waiting, I am now waiting for the investigation into my care at King College Hospital but I’m not holding my breath.

I’m also waiting for the mesh to be removed…the NHS quick to put it in and poison me and deny they are doing so. Unfortunately, not so fast to remedy their mistakes.

I will continue to share as I suspect I am not the only patient suffering because of the mesh or Kings College Hospital.

Chastity 2019 NHS England Stylie

The Tension Vaginal Tape or otherwise known as fashionablefaithgroups answer to chastity in the 21st century. How have these gynaecologist been allowed to get away with charity status and no taxes as well as damaging the patients?

I would like to applaud NHS England’s stand on chastity in the United Kingdom. It managed, without one protest, to stop thousands of women in the UK having sex.

Women on a ‘sex ban’ because of the TVT have no option but to conform. Their partners and themselves get damaged by intercourse. What kind of Government allows it’s healthcare service to do this to it’s women. This tape is torment, I hate mine, it stops me doing so many things, walking in th woods is very sorely missed.

What kind of Government would do this indeed. Perhaps a government which has been lining it’s pockets whilst in parliament rather than working for it’s constituents? This seems to be the unwritten law for politicians. Once in office they don’t do anything for normal folk.

Thousands of women have been fitted with TVT, men and women have suffered through the Starr program. These kind of experimental treatments is not what the NHS was supposed to be for. We should not have been used as lab rats for surgeries which had not been performed on humans before. It’s wrong. And now to belittle patients is worse.

What has happened the NHS??? When are the Government going to do something? DNA samples taken without permission, treatments given according to new and bizarre medical evidence. We are heading back towards the dark ages but will it end when we leave Europe or get worse?

I’m real scared it is going to get worse.

Stitched up so far, The Famous UCLH

So I learned how to spell, pronounce and the meaning of a new word today.

Recto enterocele is a bit of a mouthful and it’s meaning is full of implication.

It was discovered by my Gynaecologist – at another hospital, during a Laparoscopy, looking into the vaginal mesh implant I have and examining my ovaries and bladder. My ovaries were okay, a few adhesions but some draining and slicing left them looking healthy apparently and my vagina, , tubes and pelvic area looked healthy according to notes and following letter but as I mentioned, I do have recto enterocele. Not sure how I can look healthy and have this thing but that’s what the letter says.

It seems I’m unlucky in medical terms. I don’t have easy things to fix. Mainly because they tend to cross over between medical disciplines. A recto enterocele involves the bowel and the vagina. It isn’t an uncommon thing. I have had all the symptoms for over three years now. It is not rare for women to have these things so I’ve no idea why I’ve been left in pain so long with it.

And here’s the rub. I’ve actually been under Gastroenterology and been continually waved on by my consultant. Only having to manage to stay being seen by her with arguing with her staff to be seen and complaining to the hospital about her lack of attention. I’m due to see her tomorrow. I’m anxious.

Let me tell you about her clinic. I was desperate to get to it for starters. I’d been in another hospital for ten days being sick and losing weight quickly. They hadn’t worked out what was wrong with me but as I had an appointment with this clinic which was supposed to be specialist in my Ehlers Danlos connective tissue disorder it was felt I should be discharged into their care.

It was felt I needed a colonoscopy at least and other investigations to get to the cause of the vomiting . Was it linked to my constipation? My stomach itself was fine other than peptic ulcers and gastritis. Which, although unpleasant, not usually known for causing constant vomiting. Major nausea and rib pain. Also having blood and mucus in my poo and even pushing out a fart being excruciatingly painful.

I went to see the clinic at UCLH and Dr so and so. Initially things went okay and the Consultant seem to understand what was going on with me and arranged some tests for a return visit. On the return visit I had to undergo a strange lecture on how the anus works and the important of correct food etc. I explained that I had qualifications in nutrition and biology and although appreciated I didn’t understand how showing me a diagram of the bowel working correctly was particularly helpful in my case.

I did voice my concerns and explained that I had seen a nutritionist at the hospital and that my diet and lifestyle were not responsible for my sickness or extremely painful bowel movements. The male foreign nurse did not understand English very well and I felt is was just something I had to get through. I was happy that my daughter was present as I felt he really didn’t understand or choose to ignore what I was saying to him.

To be fair I was feeling grateful, I was told that some tests were being arranged for me and I would here in good time and return for the tests. Some weeks later I returned for the first of three tests arranged for me. This was a balloon test with an electric probe test. I made the mistake of attending on my own.

There was a woman present during the test. I’m not sure what her role was supposed to be but I felt she was not a compassionate woman as I pleaded with her to stop him from continuing the test as it was so painful. It was the male nurse who I had seen previously. I didn’t feel confident that he was doing the test. He seemed unable to communicate to me what was going on. I did ask him to stop the test. I felt that he did not listen to me at all. I was left crying, upset, and bleeding from my rectum. I was told it was my own fault for the bleeding as I had a sensitive anus.

I was distraught after this test. I found it very difficult to attend the next ones. They were badly scheduled too with only a week or two between them. One of them I had to try and poo in an MRI machine. yep.  No, I couldn’t do it. I started throwing up in the MRI machine and got taken out of there in a wheelchair I became so ill. I hadn’t had enough time to prepare and empty my bowel properly before they put up the jelly I was supposed to poo out. Also just pushing my anus in an outward movement really hurts so much that vomiting seems the only way my body knows how to handle that sort of pressure.

The other test involved eating loads of metal objects to see where they were in a weeks’ time. Guess what they were still all in me! Slow transit for sure! So one test come back with results which meant something to me as the other tests were not able to be completed properly as too painful. But no. I did this test just a week before the poo in the machine test….where was the sense in that ? If after ten days the metal bearings are still inside me how was I supposed to empty my bowel in the week before the next test? Then knowing I have problem emptying my bowel they pulled me in twenty minutes before the scan due time to ’empty my bowel’….the pressure was immense.

Anyhow, I needn’t have worried. It seems that I had nothing wrong with me. The tests showed I had no problem pooing in the machine (remember I didn’t actually do this as I got removed from the machine as I was vomiting) and that somehow all was fine with the balloon test and electro probe tests results too. There was no mention of any set of tests or scans being a problem for me. None.

So, this means that, whilst I was telling the uncompassionate male nurse that I could not feel the ‘electric pulse’ only pain that this is a normal occurrence perhaps. Even when he moved it around in my arse and I could still only feel pain and repeated would he now stop. Even when he moved it a little deeper in I could only feel pain to the point where I snapped at the female nurse in the room whether she could hear me as he seemed to not be able to…he then stopped. All that was normal stuff it seems…..

When the consultant met with me to discuss the results and recommend bowel retraining program I was so shocked I didn’t know how to respond. I did the bowel retraining program. I saw her afterwards and again voiced my concerns about the level of pain and that the scan results seemed suspect and that I didn’t understand the balloon and electro probe results. She dismissed me on this again but agreed to send me to see a neurologist to find cause of vomiting and also check on some heart test results which had shown I had a very low blood pressure level, which could be why I pass out. She asked me in an annoyed fashion if I would like her to actually check that there was no damage to my rectum after I voiced concerns that she may be missing something. A rather uncomfortable rectal examination followed where she told me that there was nothing wrong. I felt a little silly.

I’ve been back to the mental health services. I thought maybe I was making it up or somehow I was making myself ill. And of course I’ve learnt how unlucky I have been over the last few months. It seems the TVT they kindly put in as an extra when I had  a hysterectomy is made from silicon.

I didn’t need it, my bladder was fine I had endometriosis and a connective tissue disorder. The TVT caused problems immediately. I lost feeling in my clitoris, had problems emptying my bladder on the ward after the operation and then slowly over the next fifteen years my sex life completely. I did immediately asked for help but was told it was other medications I was on and I was eventually diagnosed with interstitial cystitis in 2009.

Then last year I started reading about the TVT and it’s complications. Until then, from 2006 to 2017 I firmly believed it was what I was eating, drinking etc and my lifestyle which was causing my bladder issues – again seeking help from mental health services because I’m being pushed from one hospital to another attempting to find some relief.

I carry on being sick a couple of times a month these days and try to stand up for more than a few minutes at a time but the pain in my arse, back, abdomen and vagina conspire against me and my legs buckle. I sit and I move slowing to avoid passing out. I sometimes use a wheelchair, I often use a walking stick. I rarely leave the house other than to visit the hospital.

So tomorrow I go and see my Gastro Consultant. I will be armed with a letter from my Gynae saying I have rectoentrocele. I’ve looked up the symptoms and they are painful pooing, wind expulsion, blood and mucus. So I’m going to try not to be too anxious about seeing this so called specialist and then try and be a very patient patient.

She will probably say it’s a Gynae thing. I’ve yet to see my Gynae since the last surgery. So I’m unsure as to whether they will help as it may be a complication of the TVT although the tape itself in intact still thankfully.

I can’t help feeling what a waste of NHS money and my time and all the staff involved in the tests I had done which weren’t carried out properly. They could have been carried out in a way which would have worked I’m sure but the scheduling and the staff and her own attitude was rubbish. Three years and counting. Been off sick on benefits for the last two so I can’t help thinking that under the guise of ‘helping’ the NHS is doing more to make us sick.