Tag Archives: covid19

UK Funeral Director blows whistle on Care Homes Covid deaths — Watford London Herts News UK

In a shocking video interview, a man claiming to be a Funeral Services Director of 15yrs tells his experience of what really happened. He was called every Monday from January 2020 by a Govt Pandemic coordinator who asked about numbers of covid deaths. 127 more words

UK Funeral Director blows whistle on Care Homes Covid deaths — Watford London Herts News UK

Tuberculosis is at Lowest Levels.

Detected.

request for sputum test
sputum test request showing to exclude TB in fifty year old female within a national health system

Most British people in their fifties were vaccinated against Tuberculosis at school.

I was one of those that queued up and got my TB shot.

But how long does it last?

This was the advice researched and copied on 24th July 2021 from London, UK.

Independent advice from the Guardian newspaper.

TB vaccine BCG effective for twice as long as previously thought.
https://www.theguardian.com/science/2017/aug/31/tb-vaccine-bcg…
31/08/2017 · Benefits of world’s only vaccine against tuberculosis were underestimated as new findings reveal it protects against the disease for at least 20 years.

American Advicewhich is slightly worrying tbh, as a Brit who’s had it.

Vaccines | Basic TB Facts | TB | CDC
https://www.cdc.gov/tb/topic/basics/vaccines.htm
TB Vaccine (BCG) Bacille Calmette-Guérin (BCG) is a vaccine for tuberculosis (TB) disease. This vaccine is not widely used in the United States, but it is often given to infants and small children in other countries where TB is common. BCG does not always protect people from getting TB.

United Kingdom of British Isles AdviceWe have a National Health System.

BCG tuberculosis (TB) vaccine overview – NHS
https://www.nhs.uk/conditions/vaccinations/bcg-tuberculosis-tb-vaccine
It’s less effective in preventing TB that affects the lungs, which is the more common type of TB in adults. Read the patient information leaflet for BCG AJV vaccine (PDF, 272kb) Read the answers to common questions about the BCG TB vaccine. Side effects of the BCG vaccine. Reactions to the BCG vaccine are uncommon and generally mild.

https://www.nhs.uk/conditions/vaccinations/bcg-tb-vaccine-questions-answers
The BCG vaccine contains a weakened strain of TB bacteria, which builds up immunity and encourages the body to fight TB if infected with it, without causing the disease itself. The BCG vaccination is thought to protect up to 80% of people against the most severe forms of TB for at least 15 years, perhaps even up to 60 years.

So why aren’t our NHS testing people with shadows on their lungs for TB??? I know this because I am one of the people who has been in contact with someone who has TB. I went on to have symptoms and diagnosed as COPD, but I’ve never had my sputum tested for tuberculosis because I had a vaccine thirty five years ago.

This worries me. I’m definitely not a doctor but it does interest me because it’s weird.

Just before covid19 hit our countries TB was starting to hit the headlines with a huge transmission in Wales killing at least one person.

A person has died following a tuberculosis (TB) outbreak in a Welsh village.

A further 80 people in the Llwynhendy area of Llanelli, Carmarthenshire, may have also come in contact with the disease and have been told to attend screenings for the condition in June.

And there was this…the first person to get corona virus 2019 was a Welsh teacher.

Connor Reed, 25, caught the strain while teaching English at a foreign language in a school in Wuhan – the epicenter of the outbreak – at the end of November 2019. As stated by the Evening Standard in May 2020.

This all adds up to some questions for me…What about you?

For those of you who are unfamiliar with the geography of the United Kingdom, it includes Wales.

The 2525 Pilgrimage

Inspired by a Zega & Evans song, released in the 1960s, called ‘In the Year 2525’.

The 2525 Pilgrimage by Samantha “unextraordinarybint” Harris

Centuries since Corona Virus Alpha hit Earth devastating our population, I sit here using a rusty blade, scraping marks in hope that I won’t be discovered by our monitors. We use this ancient fridge for storing clothing; working well for keeping moths out, my up-bringers and I sharing it. Now, it will bare these words for history.

At school, we’re told our ancestors used the fridges to keep carcasses fresh. It was a time when humans battled with each other, spoiling the planet with poisonous weapons. A time when people murdered Earth’s other inhabitants; selfishly eating animals, using them as a source of protein, they’d manufacture products from their carcases and enjoyed wearing animal skins, even using bones for medicinal broths and industrial glues.

I’ve never known a cold fridge. The harnessing of electrical power was outlawed for humans in 2050. For our safety, AI automatic droids maintain our planet’s electrical grids. Distribution and supply is strictly rationed to Necessary For Life organisations and not squandered by people.

I’m told my ‘need to create’ is an escalation of my illness, so I must be cautious. I’m a committed New Beginning Believer but the evilness of bad mental health remains. Managing to physically scrape one word a day has taken discipline. My addiction craves more, risking raising my heart rate to a detectable level.

Weeks after the Corona Virus Zeta variant attacked the planet in June 2030 a cohort study showed how vulnerable humans became when out of their homes. As a major medical discovery it saved billions of lives but had not been welcomed by all. Deadly violent protests spread across the world faster than the virus, destroying cities and towns, cutting utilities and leaving land scorched with fire.

It is history now, how it was necessary for AI to oversee human health for The Common Good and the protection of our species and our solar system. Our homes, for our safety, had to become human cages.

Robots now distribute our care, limiting human error. Armoured vehicles travel streets delivering water tablets and nutrition, monitoring our vital signs so we rarely starve if we are viable. Thankful, we watch through holes we’ve piped into the hives on our windows.

Foxes, snakes, sheep, wolves and deer roam outside our homes on cracked tarmac. The grass verges, left to grow naturally, encouraging wildlife, are now host to the genetic insects released to combat stray humans carrying disease. Building nests and hives around us they are able to monitor movements keeping AI informed of our well being.

State television transmits a basic program service with special entertainment on Saturday nights. Generally television informs us of how the latest health programme progresses, which locations are expecting the Build Back Better vaccination robots and the daily birth rate over death rate graph.

International Communications are impossible for most since the satellites were, for our safety, reconfigured using the same space drones that humans had invented for mining exploration. Anti vaccination terrorists had to be stopped from using the networks to organise resistance and had been blocking The New Beginning Faith broadcasts.

Automatic trucks collect human waste weekly from each street moving it to a collection point where it’s transported by crane into giant airships run on biofuel. These craft transport the sweet smelling load to the ocean where it is released for the marine life to feed upon. Diet, controlled by AI, allows us to now produce nutrient rich waste which is useful until our deaths.

Few natural humans, other than royalty, can safely move around outside. We don’t have the genetic makeup. Crane drivers have outside protective freedoms. Having a skill AI can’t master, they bare witness to how the Build Back Better system is working. I’m assigned a crane operator as my lover. I pray we’ll be fruitful.

Gratefully, I’m able to leave home once in a lifetime. I’ve been researching my Life Pathway Journey on the battery run Ethernet computer. It will be so exciting to see The London Eye. One has to be patient as the current female pilgrimage age is the first month after one’s fifty-fifth birthday.

I pray I will still be considered worthy.

The End.

Lab Rat Age – Lockdown Poem

Isolating for covid nineteen

All social distancing

It’s now twenty twenty-one

Another lock down has begun

Pfizer, Astra Zeneca and J & J

Motivated with shares and graphs

They wipe us away

Like fleas on an arse

Looking back to where to begin

I came across the story of Aspirin

Linked to Spanish Flu, who knew?

Pharma have us by the balls

Wanting funding for a new cause

Just how many more variants

Can really be found

In residents isolating, gone to ground?

We’ve vaccinated millions

Yet death figures soar

It takes no super sleuth

To unlock the cage

On Britain’s new,

Lab Rat Age.

The end.

Thanks for reading

copyright Samantha Harris (unextraordinarybint) January 2021

Thursday is the Day – journal entry

So, I went for my CT scan at Luton hospital last week. The whole thing was utterly exhausting, and it was hard for me to keep things in perspective. I did get through it, I remained polite, I got my scan and left. This coming Thursday I will return to Luton Hospital and find out whether there is something sinister or not.

I find things difficult at the best of times but getting around during the covid19 pandemic is in league of its own, one needs a degree in logistics. To be frank, I’m in so much pain, the drive itself was a chore and I was pleased to arrive in plenty of time and find the disabled carpark fairly easily.

Because I use a wheelchair and/or a trolley seat (a mobility aid which means I can walk a bit and then sit for a bit) I had the foresight to call the hospital to check where I had to go. The information they had sent through the post didn’t include anything for disabled people. I wanted to make sure the scanning dept. was okay with me not having the blood test for the kidney function, as I wasn’t having the contrast.

The lady who spoke to me on the phone was really helpful and assured me that they always see people on time so not to arrive early, else I’d be waiting in the cold and that it was fine about the dye, I didn’t have to had the contrast.

The journey went well, I did arrive early in the carpark and thought it wise see the scanner zone and check out its location. Good job I plan for bad luck as it took me ten minutes to get out of the carpark.

I was not happy. You cannot imagine the pain I am in when I stand up. I have a walking stick and a light weight frame on wheels which pulls out into a seat. I walked around the disabled carpark, twice. I then pulled out my seat and sat down. A white van was parked near me. I could see someone sat in the driver’s seat. I stare at the windscreen.
The window of it starts winding down and a man puts his head out of the driver’s side. He shouts across to me,

“You okay love?”

“Not really,” I reply. “Am I expected to jump this fence to get into the hospital? Where’s the exit?”

He laughed.

Yeah, very funny, I thought, as I was barely keeping the tears at bay. He pointed towards the wooden builder’s hording wall just in front of us and said,

“It’s on the other side of that. Just go around to the right there, around the corner and you’ll see it.”

I thanked him, gave him a smile which hopefully did not say you fucking arsehole for watching me for what seemed like an eternity, stood up with the aid of my stick and pulled my trolley around the white painted hoarding and, yes, I found the exit of the carpark and finally, into the hospital.

How hard would it have been to put a sign there?

It was then a further ten minute journey for me of walking, sitting, walking to get to the zone where the scanner was. I arrived at 9.25am for my 9.30am appointment. The weather temperature was three degrees according to my car. I was glad to be wrapped up and was feeling smug that I had a flask of tea in the car for when I returned to it. My heart was proper pounding in my chest from the effort, but I was pleased I’d not used my wheelchair as it had all been up hill.

I had my mask on. I’ve got a black fabric one as I have lung disease and need to breathe. Since I was little, I’ve covered my mouth in the cold. It hurts less when you breathe in through a scarf or big fluffy collar or cowl. I don’t mind wearing the mask but when I walk, I cough. Nothing clears the pathway faster, like Moses parting the sea as I walked through the hospital grounds, people crossed over the road rather than walk near me.

I found the area where I needed to be as a kindly man could see I was lost and struggling. He pointed out that I was really close, and but for the lack of signs I would have known.
The kindness of strangers is something I’ve come to rely on since becoming sick. I’m thankful that as a tall person I used to help people out when I was able. As a tall person you are obliged to help out shorter people or people in wheelchairs, it’s part of the ‘tall people’s’ code.

Arriving in Area D…the CT scanner. I realized that it was directly opposite Area C, which is the children department. When I say opposite, I mean the CT Scanner door was approximately two metres from the entrance to the children’s hospital.
I only point it out as they were queuing to get in and I had to wait amongst them.

Social distancing rules have seen the hospital remove seats and benches, so I was pleased with my trolley seat and tried to position myself so that when I coughed, I was facing the scanning unit rather than the pathway. I heard several envious comments about my seat.

I feel it is an ill thought out plan to keep people waiting in the same area where sick children are also waiting. It was impossible to social distance. In order to get their temperatures checked before being allowed into the hospital this queue was being pushed passed by people leaving the hospital too.

Also, it is wrong to make people stand in the cold when there is a respiratory illness going around.

Getting temperatures checked before being allowed INTO the hospital. There are too many things wrong with this…I mean the point of coming to the hospital is that you are ill.

I listened as one by one the parents were told that only one of them could attend by the side of their sick child whilst being made to stand next to strangers coughing. There was one nurse on checking them in and she was doing a cracking job at moving the queue along. I cannot blame the staff, but surely common sense would suggest this queuing does not meet the anti-transmission guidelines.

As per a sign’s instruction, I knocked on the scanner unit’s door and waited. Nothing happened so I waited until exactly 9.30am and knocked again. A serious looking man put his head around the door and asked my name. I inwardly cringed as I feverishly hoped someone else would be in there and I’m not alone with him but keep my anxiousness under control smile and give my name. He doesn’t smile back, nods acknowledgement, repeats my name and closes the door again.

A few minutes later he opened it again and tells me that they have a patient in, and it shouldn’t be much longer. Then he squeezed passed me to go get a cup of tea. I will never know whether it was for him or the patient. I did feel that when he passed me with his warm cup of tea, he had a proper smug look on his face.

This is the perceived racism I feel when faced with some health staff since the attack, stuff I didn’t notice before but now take more personally. The sly looks. The extra waiting. The not smiling back when you smile at them. I’m more wary now, that is sad. I used to just accept it but now I cannot help but question if I am waiting longer because of my name or something else I cannot control.

I was coughing pretty much constantly by the time they opened the door, and the patient came out. I was in at 9.50am and was not in a great frame of mind. The tea man introduced himself, as the radiographer and then started to question my unsuitability claim for the contrast dye.

Back in March 2019 I had an MRI and I had contrast. It was awful and the burning didn’t stop for a month. A blood test, taken in A&E in April, showed my kidneys were showing signs of damage. The doctor told me to stop drinking alcohol rather than listen to me (and my daughter) that it was the contrast dye. I don’t drink alcohol. Not all white people like it. It is water usually in my wine glass so that I look like I’m joining in.

I did my own research and found out that people who have undergone lots of surgical procedures may not be suitable for the dye. The burning I was feeling was at the areas where they’d cut into my body at previous occasions and operations. The ions in the dye tend to group together in these areas which can cause burning sensations and pain. I don’t know why it affects the kidneys.

The MRI scan last year had taken over an hour and I’d eventually asked for it to finish as I couldn’t lie on the bench any longer. The report came back as everything okay. They didn’t note my lung disease, the TVT mesh, my leaky heart valve or the rectum staples. The only thing they noted was that I didn’t have a womb, but my referral letter had said I’d had a hysterectomy.

I thought they’d gotten me muddled with another patient, but this was all at Watford last year, now I was at Luton. Different time, different location and hopefully a different outcome.

I hand Mr tea radiographer man, the forms which they’d sent me. These are forms giving consent for use of the dye and for consent for the images to be used in research and the blood request forms.

He looked a bit annoyed.

On the forms I’d written I consented for diagnostic purposes only and not the contrast injection as I have a compromised immune response issue adding it is not suitable for me. And I signed it.

Clearly, I wanted the normal CT scan and as I had already phoned up them about it, I didn’t see why I needed to justify it again to an arrogant radiographer who obviously thought I was doing it just to annoy him. He came around from behind his glass screen.

“Who said you can’t have the contrast?”

“I did” was my response and I went on to tell him what had happened, but he waved his hand at me and went back to his little booth…he shouted,

“Which hospital did you have the MRI at?”

I replied and then watched him call Watford General. I look at him and I’m thinking…WTF. If he thinks for a moment, he can bully me into something which I know will hurt me he is sadly mistaken, and I start putting my coat back on.

I can hear him on the phone…”yeah, Samantha Harris, says she had a reaction to the dye….”

I catch the eye of the female nurse helping him. I tell her silently mouthing the words…”I’m going to go now as I’m not having the dye.”

I start to stand up as he isn’t listening…he is not listening to me at all. I’ve not had the blood tests to show that my kidneys are fine for the contrast dye. I’d had this at WGH, and it had come back okay. It obviously was not okay otherwise my kidneys would not have looked like a heavy drinkers a month after the scan.

He marches over to me and gives me the forms, releasing them just before I get my hand to them.

“You may as well have these back then.” He states as they fall down on floor near my feet.

He returns to the glass screen booth and the nurse introduces herself and helps me get up on the bench. I coughed a lot. I managed to lie still for the few seconds it takes to take the scan. I’m told I can go home as soon as I am dressed.

I make my way back to the car. I pour myself a cup of tea and cry. I then realise I’ve forgotten to get all the blood tests the consultant wanted done. I cry a bit more. I’m too tired to go back into the hospital, I drive home carefully and fall asleep until the next day.

I almost cried when the blood clinic nurse put the needle in my arm for the blood tests. It was nothing to do with her technique, it’s obviously me.

I think this shows that I am a baby. My pain threshold must be exceptionally low to be almost on the ceiling for a little blood being taken.

To me, this has to be a good sign.
Now it’s a waiting game.

I find out on Thursday afternoon what the colorectal consultant thinks about my sore behind…she is called Dr Brown. Bless her.

In Dice We Trust – Poem and Article

We’re going down

The shadow found

Yet, faith in each other

Will scupper others, and

Harmony will ground

They are thinly around

With barks lesser than bites

In mobs they attack

The Sportsman’s ship

Having taken sail in the night

Throw out your arms

Do rituals and charms

Say a prayer if you must

Once the needle is in

Changes begin

In the NHS we all trust

Tonight we strike up a light

We remember what is right

We put pay to the false narratives

All the chiroptera and fedoras

And NHS board room snorers

Will burn into the history of the Brits

The End.

By Samantha unextraordinary Harris.

*Remember, remember!
    The fifth of November,
    The Gunpowder treason and plot;
    I know of no reason
    Why the Gunpowder treason
    Should ever be forgot!
    Guy Fawkes and his companions
    Did the scheme contrive,
    To blow the King and Parliament
    All up alive.
    Threescore barrels, laid below,
    To prove old England’s overthrow.
    But, by God’s providence, him they catch,
    With a dark lantern, lighting a match!
    A stick and a stake
    For King James’s sake!
    If you won’t give me one,
    I’ll take two,
    The better for me,
    And the worse for you.
    A rope, a rope, to hang the Pope,
    A penny of cheese to choke him,
    A pint of beer to wash it down,
    And a jolly good fire to burn him.
    Holloa, boys! holloa, boys! make the bells ring!
    Holloa, boys! holloa boys! God save the King!
    Hip, hip, hooor-r-r-ray

Thanks for reading. First poem is mine the second is a traditional one – pagan. Pagan meaning ‘villager’ of course, it’s true meaning.

The 5th November celebrations in my country. They remember the time that religion attempted to overthrow our government. Back then, in the 1800s, we didn’t have newspapers or the media. We remembered things with poems and songs.

It was the Catholics back in the 1800s – hopefully no other religion would be so stupid.

Us English like our freedoms.

Every 5th November we celebrate by burning a dummy ‘guy’ on top of a bonfire. We usually have lots of fireworks too. This year, I don’t know what will happen. Large gatherings are illegal. Anyone found outside could get a fine up to £10,000.

But, this is England, our united kingdom spirit will not be soured.

Recent celebrations of Guy Fawkes night have found great entertainment in burning a likeness of anyone who happens to be really annoying the British public…

one of my favs

I think you get the idea.

It’s a great release and way to get celebrate without harm. It also is a celebration of continued free speech in our country. I know that the English will still find a way to celebrate. Things may seem really dark right now, and soon the nights will be coming in.

The sun will go down around 4pm and many of us will be happy to be home in the warm. Those of us still lucky to have work will be cursing the cold winds and rain. They will be turning their collars up, wrapping those scarves around their masks and looking forward to the Spring weather. In the mean time there is much to be thankful for in an unmaterial way.

Freedom and happiness, it’s not either or – it’s not a choice, both are essential for life. I’m grateful to live in a country where I have both. Long may it continue.

Today I am hoping warmth and peace to everyone, everywhere.

Thanks for reading.

2020 5th Nov 6pm

About the New NHS Telephone Consultations…

Get comfy, this is not an exciting read. It’s personal and very boring. I have some good points, I think. It’s a hard time for many of us, if not all of us and those of us with mental health problems are finding it hard to get any kind of advice.

I have two people I trust. They both suggest different things. I am at a loss with this one. This isn’t about my mental health it’s about my physical health but it’s impact on my mind is tangible.

During the covid19 pandemic the NHS has been going ahead with the implementation of digital consultations. They have basically worked out that they don’t actually need to see the patients they can treat them on the phone or by email.

Why have actual patients at all really? Just use our NHS numbers and bill the Trust anyhow? I feel like a used car being bumped between garages until my red warning light goes on. I hope to God that not everybody’s care is like mine.

I have had several of these ‘consultations’ now and quite frankly they could be better and feel like they are a waste of my time – they could be useful but unless doctors do them properly there is no point other than the pay load for the doctor or getting medicines prescribed ( I appreciated that when I had a virus in my eyes in the Spring).

One of my conditions is lung disease…it was diagnosed in my late thirties by a shadow on the lung seen on an x ray taken at Watford General in 2009 but I’d been suffering with vomiting, fainting, and heavy mucous and digestive problems since seven years old, intermittently.

I got diagnosed when I was sent private to the BMI Harrow 2008 for my bladder and they saw cysts throughout my other organs. I told my GP and then I was sent for the chest x-ray as my rib cage, at the back, hurt. I had a large lipoma there and it was removed in case it was causing pain, but it was nothing sinister and the pain persisted.

My NHS treatment has been reasonable. I was attending a Watford General clinic, their Thoracic department of Respiratory Medicine every six months to see a doctor there called Flip (not real name). They’ve done some gas exchange tests and learnt I’ve around one third of my lung capacity left but that was some years ago.

Flip is nice and friendly but not very attentive to my condition and wellbeing…like he does seem to care but often forgets he has seen me. He has twice written to my GP saying I didn’t turn up for clinic when I had.

I always have someone with me. So, it was all witnessed that I had attended, I’ve never missed an appointment with him but have several letters saying so. So, he seems like a good doctor but old and perhaps a little distracted generally? He’s very likable.

We are in the middle of a pandemic with Covid19 so my appointment for the end of September this year was cancelled, by letter, from the Thoracic dept. at Watford General. I didn’t mind. Nothing can be done for me, so it is just me and the doc touching base so to speak. He has seen me go through many changes over the last decade.

It was surprised when I got a call from a consultant based at another hospital. She introduced herself as Dr Thingmabob (not her real name) based at St Mary’s, London. She knew all about me and obviously had my notes so although I should have questioned why my case had been moved to her, I didn’t. I think I was in shock as I wasn’t expecting the call. I assume it’s because of the pandemic.

It is a queer thing though. I get frightened when they move me about. I worry that they’ve lost me or will get me muddled with someone else. I have previously complained about the A & E dept. at Watford General denying that they had a Thoracic medicine dept.

The staff told me it was all in my head as there was no record of my chest condition in my notes and no respiratory dept. at their hospital in April 2019. I digress. All this stuff does not help. Unfortunately, there is another Samantha Harris with my date of birth living in my town. Poor woman, we actually worked at the same David Lloyd gym once. I wonder if she suffers from being confused with me.

Doctor Thingamabob was friendly but didn’t do the basics. She didn’t ask after my health or current medication. It has been one year since I last saw the service. Where did she get her information on me from? Her main interest seemed to be to get me to stop taking HRT.

A lot happens in a year. Should Doctors be making decisions on old notes they have from ‘lord knows’ before calling the patient? They ought to know how bad the NHS computer system is at collating the information on one particular patient. They use it every day.

I told her I had already stopped taking HRT. It had been advised by the breast cancer clinic after getting breast pain diagnosed as cysts seen with breast scan taken at St Albans City Hospital in early 2019 – part of West Herts Hospitals NHS Trust – should be on my notes too…I’m not sure what she can see.

Dr Thingamabob was not going to listen to me…she continued to tell me that HRT makes my lung condition worse. I told her I’d stopped taking the hormones over ten months ago. I thought that she had finally accepted this when she asked me if I had any daughters. (YEP)

We spoke a little about my daughter’s lung issues although she never asked about my daughter’s gynae issues or I could I have told her she has polycystic ovaries. Digressing, sorry. But if this was her interest than surely this be an obvious path of questioning?

I brought her back to my case by questioning her about the three different diagnosis’s I had for my lungs over the years. I pointed out that docs said cysts in my lungs at BMI Harrow, but it was changed to Bullous Lungs at Watford then to Emphysema last year, as I told the consultant I’d started smoking.

Whilst on the phone she said that she was reviewing my CT scan of my lungs and said that it was cysts, and she would like me to have a blood test for LAM as that too can be make worse by HRT. I told her again I was no longer on HRT – I was getting a little annoyed at this obsession with HRT. We said goodbye to each other, and I put down the phone thinking ‘what was that?’.

I should point out usually my blood pressure and weight are taken by the clinic. These are obviously not able to be taken on the phone so she couldn’t see I am still losing weight. I still have the cough which I mentioned to Flip last year when I saw him. It is now very annoying and hard to go anywhere as everyone stares at me. Bloody covid19!

Being that I’ve had my cough since April 2019 it’s more than likely a ‘smokers cough’. It is a very embarrassing thing to have right now. It would be really nice to have a course of steroids or antibiotics to get rid, but it will never happen…or even better to be able to give up smoking without it hurting too much or making my MVP jump.

Oh, I’m very cynical. I’m thankful to have found the acetylcysteine and use it whenever the lungs are really congested. Thank you, Amazon International. I’m thankful for the mugwort which I SMOKE as well as drink as a tea. These things have genuinely helped me.

In my country it’s illegal to get acetylcysteine without NHS prescription and it is not licenced for use with lung conditions. It is not possible to buy steroids or antibiotics or antivirals from the chemist without a GP prescription. Many people look at our system and think it’s great. It’s not. It’s a denial of medical health products and being at the mercy of selfish doctors.

The consultation was pleasant. I mentioned to my daughter that the consultant was very interested in her lungs, more than mine as she still has a womb. Then I forgot it. At the beginning of this week I got a letter from the consultant headed up from West Herts Hospitals NHS Trust…not from St. Mary’s.

The letter tells my GP that she would like me to have this LAM test as I’m on HRT and it will be making my condition worse. She also put in a blood test form which requests the VEGF Ab Test and scrawls across it ‘send it out if needed’ as she doesn’t know if the hospital has the test facility.

There is something else which she has done that confused me. She writes, within the letter, that she has reviewed my CT abdomen scan and notes it is free of cysts on the kidneys…

As she didn’t do this (looking at the scan) on the phone to me, I’ve no idea which CT abdomen scan she is referring to. However, I’m pleased that she notified my GP of the absence. It seems unlikely that I have LAM because of this statement.

Being that she states, in the letter, that the LAM test is needed as it is ‘relevant because she is on HRT’, one has to wonder how relevant the test is because that I am NOT.

I have mental health issues. I’m finding it harder and harder to trust the medical services. There is no cure for LAM, and should the test be positive I would need to transfer to Nottingham to attend a LAM clinic – it says so in the letter. That is extremely far.

I’m very tired, fed up and in an increasing amount of pain with my groin and this fecking TVT mesh. Yep my chest does hurts, I’m air hungry constantly and I’m coughing. It doesn’t take a genius to know I’ve got a bad set of lungs.

And, yes, I have had a cough for over a year and am I’m in so much pain that I cannot rest my arms against my torso and have been for over a decade this is not mentioned on any letter. It’s frustrating.

However, the NHS treatments have historically been different inhalers and contraptions for delivering medicine into the lungs. They tend to make it worse or have side effects which I cannot live with. I’m never sure what the medicines are supposed to do.

One crushing, swirling capsule gadget made my throat so sore I could barely speak (and I like to sing). Also, singing is good for the lungs. And to be encouraged. Yet, as there was no follow up to report on my usage of the medication, do they know this. How could they? It’s also such a waste.

I now have this part of the letter here which I will write word for word what she has put under diagnosis. This is a therapeutic process for me to decide whether I go for the LAM test.

Diagnosis:

  1. Previously labelled cystic lung disease with some upper cystic changes and overlap emphysema
  2. Ongoing smoker
  3. History of Ehlers Danlos syndrome – type 3 with persistent chest pains, breathlessness.
  4. On HRT (post-menopausal syndrome) but of concern if LAM present.
  5. Cyclical vomiting syndrome.

No mention of my groin issues with the TVT mesh or Stapled rectum operations…note this is very common in my communications with hospitals. They choose what they wish to note, ignore what they do not want to note, or what they are not interested in.

If she’d asked me, I could have told her I still cannot sit down comfortably and am on fentanyl pain patches and that these help with the ongoing rib/chest pain too. The night sweats are still very bad.

Which to me, makes any cohort study I may be included in, invalid as our notes are made up of bits of information not the whole story. What is relevant or not is only admissible if the doctor can see it or asks the patient what their symptoms are and lists them in the follow up letter.

Not listed, not suffering from…

It should be also be noted that I have a crossover type of EDS with classical features. My collagen is not normal. However, it is the persistent pain and breathlessness being listed under EDS rather than the lung condition which is curious.

EDS has dislocated my joints and been responsible for persistent pain in my feet, hands and joints generally since I was fifteen years old. I also have Gout in both big toes upon walking or movement.

Also, unknown, to this doctor, as she didn’t ask, I’ve not had an episode of Cyclical vomiting since I started a new medication called Cyclizine whenever the nausea starts. It’s been great. Almost six months. This was a GP intervention and has stopped the visits from the nurse completely.

It’s worrying isn’t it?

What kind of consultation is it when the doc is only interested in their agenda?

If anyone did actually read this far, thanks. Any advice appreciated.

In my heart of hearts, I don’t want the blood test, if I’m honest, – as I don’t see the point (and the hospital don’t do it so I would need to believe that WG would send it on somewhere). I assume I have to have the blood test at Watford General as there is no information in the letter regarding this.

I have my groin to deal with. Preferring to keep trips outside, drama and fuss at a minimum makes things easier for me and is helping me to cope…this isn’t helping, thinking I’ll have to travel hundreds of miles to see someone for an hour and then go again. I already have to travel hundreds of miles to see someone about the mesh removal.

However, I have mental health issues and trust is a massive factor in this. Am I being stupid?

I researched the doctor and I kid you not when I tell you she is listed at almost every hospital NHS and private hospital in the area as a respiratory consultant apart from at Watford General. Why did they tell me it was cancelled and then this doc call? Why was she so intent on making me come off HRT? Is this the way all consultations are going to go now?

Why didn’t she ask me how I was and what medication I was on now?

Do I go for the LAM test?

Will it go against me, for future treatment or consultations, if I don’t?

Thanks for reading.

Johnson, Johnson And Johnson.

https://www.theguardian.com/society/2017/dec/12/doctors-not-told-full-risk-vaginal-mesh-implants-bbc-panorama

The above article may be two years old but this is the same firm, Johnson & Johnson, our Government, led by Boris Johnson, has trusted to make the covid19 vaccine. The firm which tricked doctors and patients into accepting plastic polymer implants has been awarded more money.

https://www.dailymail.co.uk/news/article-8626619/UK-buys-potential-COVID-19-vaccines-J-J-Novavax.html

https://indianexpress.com/article/explained/covid-19-coronavirus-vaccine-update-october-14-6725217/

You could not make it up. Johnson & Johnson are a well known pharma company. They have a good name. They made it through marketing and advertising. My consultant, and others within the NHS, got monetary kickbacks from them for using their products.

The products were unsafe and many, myself included, are waiting for the complicated removal of their products to start. My surgery is continually and frustratingly postponed for one reason or another, time and time again. My recovery will take a long time once it actually starts.

The mesh, made from polypropylene, was not checked for engineering coefficients with the human body. It still hasn’t been. Yet, the medical profession are still using it to fix hernias. The current restrictions on pelvic implantation do not go far enough and the NHS decided against an outright ban.

Many mesh injury stories are not covered in the media. Thousands of men and women have been injured by this device first designed and marketed by Johnson & Johnson. Docs are using other mesh polymers like sticking plasters and ignoring the side effects. It’s a ticking time bomb.

The Government’s in bed with two of the biggest players on our globe. Pharma and Oil.

However, fossil fuel companies don’t want you looking at this 2.8 billion dollar plastic medical market in a bad light, it’s bad for investment. So, in a smoke and mirrors move, they fund the ‘clean the ocean of plastic’ campaign and use the media to attack drinking straws to tire you of the subject of plastic altogether. It works, I’m fed up of plastic talk.

TV and media is saturated with news stories of climate change and recycling written by paid PR.

The United Kingdom of the British Isles banned plastic drinking straws in England in April 2019. Yes, it is actually now illegal to buy or sell them here. I break the law regularly by asking people to bring some back with them when they go abroad…sshh.

It should be noted that no one has died as a direct result of an altercation with a plastic straw nor has any injury or damage been inflicted by one.

Zero straw companies have been taken to court for damages.

The same cannot be said for medical mesh.

The same cannot be said for Johnson & Johnson.

As a woman I’ve never felt so imprisoned. I was in medical lockdown for four years before the rest of the world was with covid19! Imprisoned by mesh and what it has done to my mobility and health.

Thanks to covid19; I am one among billions, locked safely in our homes, waiting with baited breath for news from doctors, from pharma companies and our governments.

Now my jailer’s are Johnson, Johnson & Johnson.

Obviously, with a J&J’s polymer device festering, painfully inside my abdomen I’m not going to feel great but what a slap in the face it was to hear that J & J received funding to make a covid19 vaccine after what they done to me.

Earlier this year Matt Hancock stood in front of cameras and apologised to me. He said the NHS and the government owe mesh victims a massive apology. And, then that was that. Forgive me, but that is not enough. No where near it. The fucking audacity of the man. I want this plastic shit out of me. I don’t think its too much to ask. I’ve been very patient.

“Money over morality.” That should really be the medical professions moto, or perhaps the more truthful, “Please be wary of us, we do harm” should be signposted outside every NHS Trust.

Before Johnson and Johnson are allowed to create more victims with these trials and tests on NHS patients for covid19 vaccines, surely some priority should be given to quantify and try to rectify the damage done to those of us already here through their other products?

How can a multinational company be allowed to operate against humanity and the planet’s environmental interests in the UK without any restriction? And how can they be given government funding after it’s be proven that they have done harm to patients by putting profits before safety?

Lots of questions and no answers for me. I just see all the greed and fully expect their gluttony will overcome them before any scruples will.

Ah, the drinking straws. Our gov banned them outright in such a short time regardless of the call from the disabled. It’s amazing what a so called democratic society’s government can do if they want.

They don’t want to look at plastics in medicine…it’s worth too much money. Banning the straws was a token gesture against plastic. Giving the money to J&J for the covid19 vaccine proves that NHS patients will continue to be the guinae pigs they have been for years.

What a shit show.

Thanks for reading…

Big Indians Are Beautiful – Unity

I thought I’d share this one with you in case you missed it. You wouldn’t miss it if you lived nearby!!!

India Just Unveiled the World's Tallest Statue, and It's Twice as Big as  the Statue of Liberty | artnet News

This is the Statue of Unity in India.

It cost $420 million dollars to build.

The people forced to work the land it’s built on, protested because of the poverty and waste.

This is the package that our government is giving to India…

https://www.gov.uk/government/publications/profile-of-development-work-india

This pdf suggests that our, I’m writing from England in the United Kingdom of the British Isles, aid package to India is decreasing by quite a lot. In the year 2018 they are given £98 million (Guardian) and this year are due to get £46million.

After their government (Modi, I believe) has spent so much money building a statue when many in his country are without the essentials in life it leaves a sour taste in one’s mouth. You either need the money or you don’t to be frank.

Building statues twice the size of the Statue of Liberty, in a place where people would not generally see them, smacks of someone who does not know how to budget. So, all governments waste something but this guy is a completely different scale. As you can see.

This piece is not about knocking India. Like I say Indians are beautiful. They are suffering from terribly high death toll from covid19 and my heart breaks for how the mismanagement of the basics in their country will have led to the extra deaths. Plus we all saw on social media how the police were enforcing the most severe lockdown seen on the globe…

The main reason for the statue was and is UNITY. Now that the monster is built we should at least talk about it. For me, it is hardly a good looking statue but that could be because I’m not Indian. I’d love to know what others think, especially Indian’s if there are any out there who read this and speak English please drop me a comment or message me privately.

As a tourist attraction is it a hit or a miss?

Curiosity Killed The Cat/Ordinary Day – From the Album Keep Your Distance

Thanks for reading.

Hydroxychloroquine does not prevent deaths, RECOVERY trial finds — Science Chronicle

The RECOVERY trial, a large randomised controlled trial in the UK to test five drugs, found that hydroxychloroquine drug did not cause significant reduction in mortality in hospitalised COVID-19 patients. Enrollment of participants to the hydroxychloroquine arm has been stopped with immediate effect. The RECOVERY trial, a large randomised controlled trial in the UK to […]

via Hydroxychloroquine does not prevent deaths, RECOVERY trial finds — Science Chronicle

Shared from another blog.

Bizarre, that these trials are going on. Seems the drug companies must be paying the NHS to trial their drugs to see if they work for covid19. The patients are so trusting of the NHS here in the UK. The national media and politicians have raised them to be gods. Protect the NHS rather than protect the patient.

8th September 2020 update

It is now known that the tests involved giving massive doses and killing 25% of the patients. They did not follow the guidelines of the makers during the trials. My guess is that informed consent was not gained for this bizarre abuse of human trust.

Our government and health service stink.

The Covid19 Drugs Trials – UK Recovery Trials. Are They Ethical?

“The UK is leading the world with studies of the new corona virus” says the news reader, “It’s ‘recovery trials’ are doing well”. It’s recovery trials? I do a little digging. Ah, this the name for the current drug trials for treatment of covid19 in the UK that are now starting to come to an end.

I found this, that some of you may find interesting, it’s worth watching all the way as I imagine it will be removed fairly quickly. This video does raise some concerns for the patients and the study. Listen to Dr Been (!) It gets interesting just before half way through, although it was useful from the beginning. I like his delivery and simple explanations.

 

One cannot help but wonder how this study was allowed and if the patients were really informed. I say this as I know someone who has died from covid19. After a day of attempting to get some paracetamol (there was a shortage) to get his temperature down he called the doctor. He had breathing difficulties generally and his chest was hurting. His temperature was sky high and he was sick.

An ambulance came, lots of things happened, but the main one was that he was put in a medically induced coma for his safety. No one was allowed to go with him to the hospital. I’m assuming it was same if not similar for the thousands of others who have died. Did he have drugs trialled on him or did he get the very best treatment he normally would?

Hydroxychloroquine was being trialled here on very sick patients. I have to agree with this doctor. This is not a good study. This is not ethical. As such the data is not reliable not to say how worrying it is for the British public who, unfortunately see the NHS as not being able to do them any harm. 

 

Welcome is involved which is nice to know. They are a huge organisation with great resources and are working with the NHS.

Oxford and their ‘pathways’ of treatments…thankfully started recovery trials before we got locked down in mid March 2020. How very organised they were. Let’s hope that all the patients involved would have died anyway of covid19 because otherwise this is bad.

Note, that they talk constantly of the drugs that they are studying. No one mentions patients other than where they are recruited from geographically, their demographic and that, stated very factually, there is around a 25% fatally rate in trial members.

It should be noted that these are drugs that are already licenced, not new drugs. These are known drugs being looked at under clinical guidance in different settings and doses. For instance Hydroxychloroquine is usually prescribed, cautiously, in out-patients but in these studies it is being given in huge doses at the beginning of admission to extremely ill people. This study took seventy-six days and recruited over a thousand patients.

Suspected covid19 patients are invited as well as actual covid19 positive patients.

The outcome of the studies is one of two. Does the patient live or not. So, these drugs trials are only measured by fatality. Who is looking out for the interests of these sick, probably disorientated patients? Again, is this ethical?

What happened to getting blood samples or mucous and studying them? What happened to diagnosing the patient and then treating the disease which has actually been found? According to the reports many of the trial members did not have covid19. If this is the case the ‘successful’ medicine is simply going to be licensed for treatment of covid19 if it does no real harm.

I long suspected that the UK was allowed to ‘become infected’ with covid19 in order for the NHS to be used to collect data from the infected patients to sell to pharma. But it looks like I was wrong. Big pharma control more in the NHS and the patients are now the new ethical ‘animals being experimented on’.

Thankfully the NHS is filled, mainly, with individuals that do care and for this reason we will all still continue to support the NHS.

Thanks for reading. Hope it isn’t the same Dr Been.

 

When Boris Says it’s Okay – Poem

It’s going to be the 4th of July 2020 for the lifting of the British lockdown from covid19. I think that will coincide with July 4th celebrations in America. How nice is that? We’ll all be celebrating together although apart. It will be good to lose the yoke of covid19.

I wrote this poem a few weeks ago, it occurred to me that it is so simple it could be added onto by others and carried on…?

Oh what a day

We’ll drink in pubs

Naked bodies will rub

When Boris says it’s okay

 

When Boris says it’s okay

I’ll hug my Grandchildren

Until they pull away

Planting kisses on their faces

We’ll go to visit places

When Boris says it’s okay

 

When Boris says it’s okay

We’ll eat together, in restaurants and cafes

And have picnics in the shade

The sun will blaze over a party haze

When Boris says it’s okay.

 

 

Will Nits Survive Social Distancing?

In the UK school system head lice have been an epidemic since the nit nurse was removed from schools during the 1980s and 1990s.

Parents of school age children now regularly nit comb through their children’s hair.

Will covid19 make lice obsolete? How far can they jump? Social distancing is currently two metres although in school the children will be placed in ‘ bubbles’ of two or three children. Will it be easier to keep lice under control?

*scratches head

The strategy being used to slow transmission of a deadly corona virus may be lacking but the threat to head lice is surely real?

NHS our national health care system advice has some advice about hair lice.

I’ve given myself the eeebbeegeebees writing this .